Disclaimer: dear casual reader, this post is a bit technical, mostly posts here are funner :)
Disclaimer 2: these are self-administered and self-scored tests. They are not intended as a diagnosis but as a screen and I have completed them for interest as Tokoroth is already in the middle of the series of diagnostic assessments. The fact that I score in the BAP range is entirely consistent with current theory.
I spent a lot of today calculating Tokoroth's Autism Spectrum Quotient (AQ). The problem is that he's too old for the Q-CHAT (Quantative Checklist for Autism in Toddlers) which is ideally applied pre-24 months and too young for the AQ for Children.
All of the tests are available to download from Simon Baron-Cohen's website: http://www.autismresearchcentre.com/ which is a website I wish I had found a lot sooner. I discovered it because I am reading his latest book which I suspect my current SK124 OU course is based on.
I decided to run with the Q-CHAT but retrospectively answer his questions as he was at 2 with some annotation of where there has been change.
http://dl.dropbox.com/u/41893/Completed-Q-CHAT.pdf (score: 62/100)
(the red ticks are the answers for his brother, Little M, which I used as a control set of answers from a typically developing child)
I then ran the standard AQ-Child for children 4+ years
http://dl.dropbox.com/u/41893/Completed-AQ%20-Child.pdf (score: 105/150)
and finally, as advised I ran the AQ-Adult against myself:
http://dl.dropbox.com/u/41893/Completed-AQ-Adult.pdf (score: 27-31/50)
The reason I have 27-31 is that I kept re-interpeting the questions and that's the range I fell between. Interestingly it turned out I wasn't the only one self testing and a conversation on Twitter (with @melph) led me to an online resource for the same test on wired.com.
In the first major trial using the (adult) test, the average score in the control group was 16.4. Eighty percent of those diagnosed with autism or a related disorder scored 32 or higher. So, now I have tests and scores. What I don't have, yet, is a clear understanding of how to interpret the scores for the Q-CHAT and the AQ-Child.
I think it's fair to say that Tokoroth scores pretty high and I am nudging but not on the disorder side of the spectrum. I was a little higher than I expected but the test means very little on it's own. What was quite funny was that after running the tests I took a break to build some Lego with Little M. I found this very relaxing. When I returned to the ARC website I found a link on Lego therapy!
[This post is a work in progress]
edit: Interesting, according to the book, between 27 and 32 is a classic range for BAP.
Tuesday 29 December 2009
Echolalia 2 - Paint!
(click on the title to play the audio)
There must be an easier way to embed audio, I'll work on that. Again, the context here is bedtime, sat up watching a little bit of Tom and Jerry ahead of wind down and reading time. I try to engage with Tokoroth using his wallchart to try and encourage him to count and verbalise. I have some success but it goes predictably wrong along the way. Some of his responses to his questions make me smile a lot.
The good news here is that echolalia like this is a sign of him trying to speak, he just doesn't quite know how to form the words he needs. It's very similar to the babble you hear from a toddler when they process words they have heard in the cots/beds in the early hours.
The speech delay website I found earlier makes it clear that this condition can exist outside of autism and given that his repetitive behaviour is quite low this will be an avenue that gets explored, indeed it is the SALT (speech and language therapist) that will perform his next assessment in the nursery,
There must be an easier way to embed audio, I'll work on that. Again, the context here is bedtime, sat up watching a little bit of Tom and Jerry ahead of wind down and reading time. I try to engage with Tokoroth using his wallchart to try and encourage him to count and verbalise. I have some success but it goes predictably wrong along the way. Some of his responses to his questions make me smile a lot.
The good news here is that echolalia like this is a sign of him trying to speak, he just doesn't quite know how to form the words he needs. It's very similar to the babble you hear from a toddler when they process words they have heard in the cots/beds in the early hours.
The speech delay website I found earlier makes it clear that this condition can exist outside of autism and given that his repetitive behaviour is quite low this will be an avenue that gets explored, indeed it is the SALT (speech and language therapist) that will perform his next assessment in the nursery,
Monday 28 December 2009
Echolalia - Story time (audio)
(click on the title to listen to the recording)
(context: bedtime, sat up in bed 'babbling' as I got him ready for bed)
I think I have given up on the 'big' post on Echolalia and have decided to break it into smaller posts. The purpose of this to record snippets of Tokoroth's speech, his receptive and generative speech specifically and to capture his echolalia, if that's even what this is. Remember I am making observations based on what I have read from sources that I trust. I am a lay person therefore it is entirely likely I don't have a clue what I am talking about. Caveat over, let's begin.
What is echolalia?
The flippant answer would be: "what is echolalia?" because it is, simply stated, the repeating of speech as opposed to the generation of speech. Immediate echolalia is literally repeating back the question as a form of answer, Delayed echolalia is the repeating back of phrases (heard on the TV or from people) randomly and out of context days, weeks or months later.
There is a quite detailed explanation of the disorder on a US 'special ed' website which points out this sort of babble is quite normal in toddlers:
(context: bedtime, sat up in bed 'babbling' as I got him ready for bed)
I think I have given up on the 'big' post on Echolalia and have decided to break it into smaller posts. The purpose of this to record snippets of Tokoroth's speech, his receptive and generative speech specifically and to capture his echolalia, if that's even what this is. Remember I am making observations based on what I have read from sources that I trust. I am a lay person therefore it is entirely likely I don't have a clue what I am talking about. Caveat over, let's begin.
What is echolalia?
The flippant answer would be: "what is echolalia?" because it is, simply stated, the repeating of speech as opposed to the generation of speech. Immediate echolalia is literally repeating back the question as a form of answer, Delayed echolalia is the repeating back of phrases (heard on the TV or from people) randomly and out of context days, weeks or months later.
There is a quite detailed explanation of the disorder on a US 'special ed' website which points out this sort of babble is quite normal in toddlers:
"Echolalia occurs in normal language development yet decreases as the typically developing child gains more spontaneous generative language. In children with autism, echolalia occurs with greater frequency and lasts for a longer period of time as the child with autism typically experiences significant difficulty developing spontaneous, generative language skills."Also on that website is an example which actually applies 100% to Tokoroth:
A child with autism is very anxious about where he will be going after school as the destination changes frequently. He says repetitively throughout the day, "Go to grandmas?"
He says that. Exactly that and, probably, for exactly that reason. Right, short and sweet, example one of his echolalia and an explanation of what it is. I intend to collect more examples to feed into his, eventual, multidisciplinary assessment.
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